Invited talks and workshops

Health and Technology

(18-19 November 2020) “Workshop to consider, challenge, and unpack the notion of a “serious” disease or condition”. Hosted by the Stem Cell Network (SCN) and the Centre of Genomics and Policy (CGP), Montreal,  McGill University, 18-19 November.

(22 June 2020) Panelist discussing trust and ethics in the “COVID-19 Contact Tracing: Legal and Ethical Challenges” webinar, hosted by IP Osgoode, IDC Herzliya’s Harry Radzyner Law School (Israel) & Microsoft Canada as part of the Bracing for Impact III – Emerging Technologies webinar series, Toronto, ON.

(16 March 2020) “Legal and Ethical Barriers to Integrating AI into Paediatric Clinical Care” on the AI, Health & Big Data panel at Bracing for Impact III – Zooming Out: Emerging Technologies conference, Herzliya, IL, 9-10 November (cancelled due to COVID-19).

(28 November 2019) “A Personal Case for Timely Access to New Therapies” Innomar Live 2019 Conference Series 2019, “Commercializing in Canada: Synergies between regulatory and health technology agencies”, Toronto, ON.

(19 November 2019) Panelist: “Panel on Big Data”. Holland Bloorview Research Symposium, “At the forefront of radical change: Transformational discoveries in childhood disability research”, Toronto, ON.

(13 November 2019) “The Role of Black Box AI in Clinical Care”. University of Toronto Joint Centre for Bioethics Seminar Series 2019-20, Toronto, ON.

(12 November 2019) “AI in Legal Education” Ontario Bar Association TECHxpo Conference, Toronto, ON.

(17 June 2019) Plenary Keynote: “How Emerging Technologies are Transforming Patient Advocacy”. CIHR Institute of Genetics, Canadian GE3LS* and Health Services and Policy Research Conference, Montebello, QC.

(30 May 2019) “Personalized Medicine, Data Privacy/Ownership and Related Issues”. Canadian Bar Association National Intellectual Property Day, Ottawa, ON.

(21 March 2019) “Integrating AI Clinical Decision Support Tools in the Electronic Health Record: Data Governance”. Bracing for Impact – The Artificial Intelligence Challenge: A Road Map for A.I. Governance in Canada (Part II: Data, Policy & Innovation), Toronto, ON.

(28 February 2019) “Dr. Google and the Standard of Care”. McGill Medical Students’ Rare Disease Interest Group (RareDiG), Rare Disease Day 2019, Montreal, QC.

(26 October 2018) “Bioethics: Challenges and Opportunities”. CBA/OBA professional development program “The Legal Implications of Personalized Medicine”. Toronto, ON.

(25 October 2018) Testimony before Canada’s House of Commons’ Standing Committee on Health in relation to its study of barriers to access to treatment and drugs for Canadians affected by rare diseases and disorders, Ottawa, ON.

(18 July 2018) National Pharamacare Consultations, hosted by the Advisory Council on the Implementation of National Pharmacare. Toronto, ON.

(28 February 2018) “Our Family’s Rare Disease Journey: A Winding Road with Purpose”. Rare Disease Day at The Hospital for Sick Children (SickKids), Toronto, ON.

(15 February 2018) “A Call to Action: Moving Forward with Canadian Artificial Intelligence Policy”. Digital Doings: Perspectives on Artificial Intelligence Research Symposium, York University, Toronto, ON.

(1 December 2017) “The Federal and Provincial Science Policy Landscape” (panelist). Life Sciences Ontario Annual Policy Forum, Toronto, ON.

(7-10 September 2017) “Building Awareness, Access and Community through Advocacy”. International Conference on Rare Diseases & Orphan Drugs, Beijing, China

(8 June 2017) “Patient as Partners and Advocates”. Novartis Auto-Inflammatory National Advisory Board, Novartis Pharmaceuticals Inc., Toronto, ON.

(24-26 May 2017) “Out of Sight, Out of Mind: How Rare Disease Patients have been Forgotten”. Canadian Bioethics Society Conference, Montreal, QC.

(4 April 2017) “A New Chapter for Mankind: The Editing of the Human Genome: The Good (Eradicating Disease) and the Bad (Designer Babies)” (with Feng Zhang and Janet Rossant). The Gairdner Foundation, Massey College, Toronto, ON.

(30-31 March 2017) “Challenges in Getting to Diagnosis”. Canadian Organization for Rare Disorders, Vancouver, BC.

(28 February 2017) Keynote: “Personalized/Precision Medicine-Science, Ethics and the Law: Examining the implications of CRISPR gene editing technology” (with Ron Pearlman). Healthy Matters Research Symposium, York University, Toronto, ON.

(15 February 2018) “A Call to Action: Moving Forward with Canadian Artificial Intelligence Policy”. Digital Doings: Perspectives on Artificial Intelligence Research Symposium, York University, Toronto, ON.

(7 November 2016) “Centres of Excellence for Autoinflammatory Disorders” (with Ron Laxer). Canadian Expert Patients in Health Technology Conference, Toronto, ON.

 

Professional and Public Ethics

(11 September 2019) “Does Anyone Really Care About Government Ethics Laws?” York Collegium for Practical Ethics, York University, Toronto, ON.

(3 December 2018) Testimony before the Senate of Canada Committee on Ethics and Conflict of Interest for Senators in relation to its consideration of matters relating to the Ethics and Conflict of Interest Code for Senators, Ottawa, ON.

(13 December 2017) “Understanding and Debating the Role of Agents of Parliament” (roundtable participant). Public Policy Forum at University of Toronto School of Public Policy, Toronto, ON.

(12 December 2017) “Ethical and Professionalism Practices for OSC Lawyers”. Osgoode Professional Development, Toronto, ON.

(3-6 December 2017) “Independent Ethics Oversight: Innovation, Advancement and Lessons from the Corporate World” (panel with Lorne Sossin, Anita Anand, Ian Greene & Val Jepson). Council of Government Ethics Laws conference, Toronto, ON.

(16 February 2017) “Transparency, Accountability and Trust: Examining the Public’s Evolving Relationship with Parliamentary Ethics Laws in Canada”. Jim Pattison Ethical Leadership program, Ted Rogers School of Management, Ryerson University, Toronto, ON. (slides)

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